Google DIPG Support Group

[dipgdad]

There is a DIPG Support Group that has many wonderful people available to share their experiences as well as offer support to other families. It includes parents who currently have children battling, those who know the pain of having a child "Lifted Up" and some who don't have a child with DIPG but just want to offer up their support and help in any way they can.

The description from their home page:
A support group for families of children who know first hand the pain of a DIPG diagnosis (Diffuse Intrinsic Pontine Glioma) or variants of that disease (DPG, BSG).

We also welcome those in their everyday lives who may have concerns; their friends, teachers and church leaders for example.

http://groups.google.com/group/dipg2

As the group is a private group and not open to the general public, when you apply, simply state your connection to DIPG and you will be approved.

[Amanda]

That's great information. post any DIPG event/support information you find! Thanks!

[MattSharp]

There is another group on Yahoo as well. I belong to both groups myself and I feel that both groups add tremendous value to support the DIPG community and aslo help educate those family members ( aunts, uncles, Grandparents, teachers) of these children battling this monster.

You can do a search in Yahoo Groups or click http://health.groups.yahoo.com/group/DIPG/ to learn more.