What We Do 

• Identify and fund new, medically viable treatments for childhood brain tumors. 

• Provide message forums for families of children with cancer to talk with others fighting the same battle and to learn more about these rare types of tumors. Our forums promote open dialogue between parents, doctors, and researchers worldwide in an effort to find a cure. 

• Develop and distribute educational material to children's hospitals around the country that can be provided to parents of newly diagnosed children.

• Compile and store information voluntarily supplied to us by parents with children battling rare cancers pertaining to their child's diagnosis, treatment protocols, results, and other relevant data.  Our goal is to isolate trends and patterns in the data in hopes of helping other parents and doctors make the best choices for their children and patients. 

Our Research Focus

CBTRF seeks to identify, promote, and support research aimed at delivering therapy directly to the affected areas rather than to the entire body, thereby minimizing collateral damage to healthy tissue and organs, and improving quality of life for survivors.

Though all types of childhood tumors are rare, we specifically concentrate our efforts and funds on the most understudied types of tumors, typically overlooked by other funding organizations, including:

• Atypical Teratoid Rhabdoid Tumor (AT/RT and MRT), including kidney (RTK)
• Diffuse Intrinsic Pontine Glioma (DIPG)
• Pediatric Glioblastoma Multiforme (GBM)
• CNS Germ Cell Tumors
• And other rare pediatric tumor types

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